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  Links to useful resources.
   
We arrange free air transportation for cancer patients travelling to treatment using the empty seats on corporate jets. Call the Corporate Angel Network Toll-Free Patient Line  to register within three weeks of a specific appointment at a "recognized* cancer treatment center.
   
Angel Flight
Angel Flight - Free air transportation for cancer patients travelling to treatment using the empty seats on private aircraft. 
   
By creating, finding and supporting programs that directly improve the health and well-being of children, Ronald McDonald House Charities (RMHC) is working to better the lives of children and their families around the world.
   
Doc Finder
Administrators in Medicine links to physician profile systems in dozens of states. In a managed health care enviromment you may become involved with a number of specialist physicians. Many States now offer a glimpse of physician histories online. Get to know your child's doctors!
   

CaringBridge offers free, easy-to-create web sites that help connect friends and family when they need it most.

   
CarePages are free, personal, private Web pages
that help family and friends communicate when
someone is facing illness.
Sharing your story allows you to reach other families facing similar struggles.
   
Children's nutrition needs can change during cancer treatment. A child may need up to 50% more protein to ward off infections, as well as extra fluids to prevent dehydration. Learn more about what is needed to support good health and a strong recovery.
   
It's hard to think straight when you first hear "cancer." Look here for guidance.
   
Association of Cancer Online Resources. ACOR is an Internet-based public charity "listserv" dedicated to improve the quality of care provided to cancer patients and the quality of life of patients, survivors and their caregivers. Here you can exchange information with hundreds of other parents as well as access information resources specific to Neuroblastoma.
   
Resources and information for parents of children with cancer . . . by parents of children with cancer.
Resources and information for parents of children with cancer . . . by parents of children with cancer.
   
In this overwhelming time, the best defense is information. Learning about a child’s specific cancer, its treatments and their side effects will help you prepare for the road ahead.
   
The Children's Neuroblastoma Cancer Foundation is here for you.  Through our experience with neuroblastoma and network of families and medical professionals, we are committed to use our experience as a tool in supporting the needs of the children and their families and provide funding to the medical community for new and advanced research studies.
   
I've found this book to be an excellent reference to parenting and advocating for a Neuroblastoma patient. It is available on Amazon.
   
   
   

 

   
 
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©2007, Ellen Hanson