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While Neuroblastoma is a rare disease it is the third most common childhood cancer. These links are a place to begin. When you are ready they will help you to gain an understanding of what you'll be dealing with.

Its important to remember that every Neuroblastoma  patient is unique. There is no fixed roadmap for treatment. The different stages of the disease are just markers and don’t necessarily predict outcomes or define the best options for treatment. The treatment of cancer in general, and Neuroblastoma in particular, is as much art as science.

There are two recurring themes on the subject of  reading statistics about cancer. First of all, after a diagnosis of cancer, parents and patients are almost always overwhelmed by the diagnosis. Confronting the statistics of cancer treatment may not be the first thing you want to do.

At some point in the first few days or weeks you will begin to get your equilibrium back. At this point it is worth noting the second recurring theme about self education on the subject of Neuroblastoma, including examining the statistics of cancer treatment. Many veteran parents say that they benefited from an understanding of the facts about cancer and cancer treatment in one very important way; it gave them an understanding that this is an aggressive disease, and that it requires aggressive advocacy.

These links are here for you when you are ready to deal with them. Remember that statistics are just numbers, Your child is not a statistic. Your child’s case is unique. Every hour of every day in a child’s life is something of inestimable value. Every hour is so precious, every day is a gift.  
   

Up to the minute information on Neuroblastoma from the National Cancer Institute.

Information on Neuroblastoma for doctors

Information on Neuroblastoma for patients

 

Through our experience with neuroblastoma and network of families and medical professionals, we are committed to use our experience as a tool in supporting the needs of the children and their families and provide funding to the medical community for new and advanced research studies.

Very useful information from the Pediatric Oncology Center

Good general information on childhood cancer

   
CureSearch unites the world's largest childhood cancer research organization, the Children's Oncology Group, and the National Childhood Cancer Foundation. This is one of the most comprehensive sites on childhood cancer treatment. Visit their site by clicking here.
   

 

 
   
   
   
   
   
   
   
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