Neuro-what??

Your child has been diagnosed with Neuroblastoma, a childhood cancer. Today fewer than two children were diagnosed with Neuroblastoma in the United States. I don’t have to imagine how you’re feeling. It happened to me. You are frightened, in shock.

How could a baby or child be diagnosed with cancer? What is it?  What does it mean?  You feel out of control. 

We can’t control everything, but we can control the path that we take. This site by design has a very narrow focus. We hope to provide a portal for you into the community of people who are battling this disease. Its a starting point to provide support and information for you to deal with the first few weeks after a diagnosis of Neuroblastoma. As you gain experience and confidence there are dozens of wonderful resources available to you and your family beyond the scope of this site. The friendships you make in this community will be some of the best and most lasting of your life.

Because there are so few of us, unlike more common cancers, you won’t find a support group specifically for parents of children with Neuroblastoma in every village and town in America. That doesn’t mean there aren’t any, it’s just that they’re a bit harder to find.

We are all here for you as you assume the role of advocate for your child. This site will help you to connect to others who share your experience with this cancer, and who have dealt with the questions you’ll have, and with the important decisions you’ll be making in the weeks and months to come.

Our common bond is our love for our children, and for each other, and hope, always hope....